This section provides references to articles and resources on children with ME/CFS.
The Royal Children's Hospital run a program for young people living with any type of chronic illness or medical condition, including ME/CFS. For more information on the Chronic Illness Peer Support (ChIPS) Program, please click here.
The Victorian Government Program for Students with Disabilities aims to maximise student potential growth in education and learning, and ensure that students with disabilities are valued and participate in all aspects of school life, consistent with optimal and relevant goals and aspirations. A copy of the information booklet can be downloaded here.
The Association of Young People with ME (UK) is the largest charity for children and young people in the UK with ME/CFS. Their website provides news, resources and information related to health practices and treatments, and education. AYME also provides a 'functional ability scale for young people and children with ME', available here.
Victorian Legal Aid and the Office of the Public Advocate have produced a booklet entitled 'Securing their future: For parents of children with a decision-making disability'. The booklet covers making enduring powers of attorney; applying for a guardian and administrator; and making a will and planning your estate.
The Australian Association for Families of Children with a Disability is a non-proft, community organisation supporting families. They advocate on behalf of children with a disability and their families to ensure the best possible support and services are available from government and the community.
To link and chat to others aged 10-21 with a serious illness, chronic health condition or disability, visit www.livewire.org.au/members.
Journal Articles
Bell, David S, Jordan, K & Robinson, M (2001) 'Thirteen-year follow-up of children and adolescents with Chronic Fatigue Syndrome', Pediatrics, vol. 107, pp. 994-998.
