Information and resources related to the evaluation of ME/CFS services and models of care.

UK ME Association, 'Managing my ME: What people with ME/CFS and their carers want from the UK's health and social services', May 2010. The results of the ME Association's major survey of illness management requirements.

Young ME Sufferers Trust, 'What young people with ME require from an ME/CFS clinic'.  This report discusses ways in which an ME clinic can help children and young people to be taken seriously by their GP, by their families and the community.

Mackie, P (2009) Health care needs assessment of services for people living with ME/CFS, Scottish Public Health Network [Full Article, May].

Erwine, Dan (2010) 'Chronic fatigue [syndrome]: Dan Erwine looks at research into the causes of chronic fatigue syndrome being conducted in Reno by the Whittemore-Peterson Institute', KUNR FM, Nevada Newsline Radio Program, broadcast 6/8/2010.

ME/CFS Research and Treatment Centre, UK

Crucial talks are under way to establish a world class research and treatment centre in Norwich, UK. Talks between the Invest in ME charity, the UEA and NHS Norfolk have taken place with the view of setting up a centre to properly research, diagnose and treat ME/CFS. If it goes ahead, it will be the first centre of excellence in the UK.

News Article: Invest in ME: A UK Centre for Biomedical Research into ME

News Article: EDP24: Norwich centre for ME sufferers planned

Cognitive Behavioural Therapy/Graded Exercise

Malcolm Hooper, Emeritus Professor of Medicinal Chemistry Department of Life Sciences University of Sunderland, provides the scientific evidence AGAINST the use of CBT and GET as the primary treatment approach to ME/CFS.

Hooper, M (2010) 'Magical Medicine: How to make a disease disappear', University of Sunderland, UK (442 Pages) [Full Article].

ME Action UK: Letter from Professor Malcolm Hooper to Sir Michael Rawlins, chairman of NICE.

Maes, M & Twisk, F (2009) 'A review on cognitive behavorial therapy (CBT) and graded exercise therapy (GET) in myalgic encephalomyelitis (ME) / chronic fatigue syndrome (CFS): CBT/GET is not only ineffective and not evidence-based, but also potentially harmful', Neuroendocrinology Letters, vol. 30, no. 3, pp. 275-420 [Abstract] [Full Article].

Maes, M & Twisk, F (2010) 'Treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multisystem disease, should target the pathophysiological aberrations (inflammatory and oxidative and nitrosative stress pathways), not the psychosocial “barriers” for a new equilibrium', Patient Education and Counselling, [Abstract, published online Mar 19].

Johnson, Cort (2010) 'Not so fine after all: The FINE trial crashes to Earth', Phoenix Rising Forums, May 2nd. Accessed 17/5/10.

CFS/ME Independent Working group (2002) A Report of the CFS/ME Working Group to the Chief Medical Officer, UK.