This section contains key information and articles on internationally renowned clinicians and researchers in ME/CFS.
- Professor Kenny de Meirleir
- Professor Michael Maes
- Dr Sarah Myhill
- Dr Paul Cheney
- Whittemore Peterson Institute for Neuro-Immune Disease
- Dr Judy Mikovits
- Dr Nancy Klimas
- Dr Derek Enlander
- European Society for ME (ESME)
- Dr Byron Hyde
- Emeritus Professor Malcolm Hooper
- Dr Martin Lerner
- Dr Charles Lapp
- Dr Eleanor Stein
- Dr Alison Bested
- Dr John Chia
- Professor Martin Pall
- Dr Richard van Konynenburg
- Dr David S. Bell
- Dr Jacob Teitelbaum
- Ashok Gupta
- Dr. Jose Montoya
Professor Kenny de Meirleir
Professor De Meirleir is a world renowned researcher and Professor of Physiology and Internal Medicine at the Free University of Brussels in Belgium. He assesses and treats 3,000 to 4,000 ME/CFS patients annually. Dr De Meirleir was one of four international experts on the panel that developed the Canadian Consensus Document for ME/CFS. Dr De Meirleir is co-editor of 'Chronic Fatigue Syndrome: A Biological Approach', co-editor of the Journal of Chronic Fatigue Syndrome and reviewer for more than ten other medical journals.
Slide notes. Medical Education session, Melbourne, September 2011. Hosted by ME/CFS Australia (Vic, Tas, NT)
Article: de Meirleir, K et al (?) 'Is the mechanism of systemic immune activation in XMRV positive CFS patients similar to that observed in HIV'.
Video Presentation: March 2010, entitled 'Interview with Professor de Meirleir', in Sweden on the 10th November 2009, part one (9.34) and part two (10.37).
Slide Presentation: October 2009, entitled 'What causes CFS/ME? Is it all in the gut? Research on extremely disabled ME patients reveals the true nature of the disorder'.
Slide Presentation: June 2009, 'Conference on ME for Health Personnel' in Norway; presentation is entitled 'Scientifically-based work up in ME patients'.
Slide Presentation: June 2009, 'Conference on ME for Health Personnel' in Norway; presentation is entitled 'ME is a treatable disorder: Treatment outcome based on scientifically based medicine'.
Slide Presentation: May 2009, press conference, in London, entitled 'ME/CFS, hydrogen sulfide and aberrant prion disease'.
Journal Article: De Meirleir, K et al (2009) 'Increased D-lactic acid intestinal bacteria in patients with Chronic Fatigue Syndrome', In Vivo, vol. 23, no. 4, pp. 621-8. [Abstract]
Journal Article: De Meirleir, K et al (2009) 'Detection of herpesviruses and parvovirus B19 in gastric and intestinal mucosa of chronic fatigue syndrome patients', In Vivo, vol. 23, no. 2, pp. 209-13. [Abstract]
Click here for Prof. de Meirleir's presentation at the 6th International Conference on HHV-6 & 7
Baltimore, Maryland, USA, in June 2008.
News Article: Hope, Alan (2009) 'Face of Flanders - Kenny de Meirleir', Flanders Today, June.
Professor Michael Maes
Professor Michael Maes is a world renowned psychiatrist with research interests in ME/CFS, Fibromyalgia, Depression, Schizophrenia and Autism. His research and clinical practice involves investigation of internal and external stressor NFKB, cytokines, inflammation, oxidative stress, leaky gut, Omega 3/ 6 and autoimmunity.
Slide Presentation: August 2011 developed for ME/CFS Australia (Vic, Tas, NT), ME/CFS: an inflammatory and oxidative stress disorder.
Dr Sarah Myhill
Dr Sarah Myhill's book 'Diagnosing and Treating Chronic Fatigue Syndrome' provides a practical guide for the treatment and management of ME/CFS. Copies of the book are available free online in PDF format at Dr Myhill's website. Hard copies can be borrowed from ME/CFS Australia (Victoria)'s library. For information on Dr. Myhill's diagnostic test for ME/CFS, click here.
Gut Bacteria, the H2S Test and Mitochondrial Dysfunction in ME/CFS, by Dr Sarah Myhill
Dr. Sarah Myhill puts it all together simply and suggests things to try. [Full Article]
Myhill, S et al (2009) 'Chronic fatigue syndrome and mitochondrial dysfunction', International Journal of Clinical and Experimental Medicine, vol. 2, no. 1, pp. 1-16 [Epub ahead of print, Jan]
Grant EC, Myhill S et al (1999) 'Mortality associated with oral contraceptive use. Medical profession needs to examine facts', BMJ, vol. 319, no. 7206, pp. 387.
Grant EC, Myhill S et al (1996) 'Breast cancer and hormone exposure', Lancet, vol. 348, no. 9028, pp. 682.
Dr Paul Cheney
CFS and Stem Cells: A Warning, by Carol Sieverling (on behalf of Paul Cheney)
Sieverling discusses the impact of stem cell treatments in patients with ME/CFS, and Dr. Paul Cheney's three concerns regarding people with ME/CFS undergoing stem cell therapy [Full Text].
On April 25 2009, Dr Paul Cheney presented at a seminar in Washington on CFS and oxygen toxicity, and his latest four-part treatment protocol. A copy of the DVD, entitled 'CFS: Is Oxygen the Problem?' is available from the ME/CFS Australia (Victoria) library for our members to borrow. Copies of the DVD set are available to buy online here.
Website: CheneyResearch.Com, includes access to regular research newsletter.
Whittemore Peterson Institute for Neuro-Immune Disease
Website: http://wpinstitute.org/xmrv/index.html
The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.
In October 2009, the Whittemore Peterson Institute for Neuro Immune Disease announced that through their research, the retrovirus XMRV is greater than 95% of the more than 200 ME/CFS, Fibromylagia, atypical MS patients tested (http://wpinstitute.org/xmrv/index.html).
For more information on XMRV and ME/CFS, please click here.
Dr Judy Mikovits
Dr. Judy Mikovits is the research director for the Whittemore Peterson Institute at the University
of Nevada, Reno.
News Article: Nevada Silver and Blue, Winter 2010: Whittemore Peterson Institute researcher makes major breakthrough in Chronic Fatigue Syndrome.
Click here to access a video presentation by Dr. Judy Mikovits on XMRV, posted on Prohealth on the 27th of January 2010.
Dr Nancy Klimas
Dr. Klimas is director of the Allergy and Immunology Clinic; Director of Research for the Clinical AIDS/HIV Research at the Miami Veterans Affairs Medical Center; current President of the International Association for CFS; principal investigator of the NIH Center for Multidisciplinary Studies of CFS Pathophysiology at the University of Miami; member of the inter-agency CFS Coordinating Committee which is chaired by the Surgeon General of the United States; and is a founding editor of the Journal of Chronic Fatigue Syndrome.
November 2009: Slide presentation: XMRV CFS/ME and You.
Click here for direct links to segments of the slide presentation.
Dr Derek Enlander
A Belfast-born doctor who specialises in the diagnosis and treatment of myalgic encepalomyelitis (ME) practicing in New York.
News Article: Irish Medical Times: Belfast born doctor pushes ME research, by Dara Gantly.
European Society for ME (ESME)
ESME are a 'think tank' scientific panel that wants to initiate an effective research effort to find the secret behind the mystery disease ME that cripples an increasing number of lives.
One of ESME's primary goals is to establish ME clinics throughout Europe and hopes that 2010 will see other doctors step forward and specialise in the exciting and complex field of ME.
Website: http://esme-eu.com
News Article: Scientific panel members of ESME.
Dr Byron Hyde
Dr Byron Hyde has been instrumental in understanding the distinct difference between ME and CFS. Dr Hyde has been consulting with Canadian patients with ME/CFS for over 25 years. He co-authored the first text book in 1992 called 'The Clinical and Scientific Basis of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome', Nightingale Research Foundation, Ottowa. The textbook is available from ME/CFS Australia (Victoria)'s library.
A new book, 'Missed Diagnoses' was published in 2009. Copies of the updated and expanded edition are available for sale from ME/CFS Australia (Victoria) for $25 plus postage and handling.
For further understanding on the diagnostic differences between ME and CFS, see Chapter 3, entitled 'Complexities of Diagnosis' by Byron Hyde in The Handbook of Chronic Fatigue Syndrome (2003) J, Leonard; P, Fennell; R Taylor, published by John Wiley and Sons Inc. You may wish to download a copy to use as a basis for discussion with your doctor.
A paper from the 2009 Goteborg and Malmo, Sweden ME Conferences by Dr Byron Hyde is available to download here. The information in this document is very similar to that which was presented by Dr. Hyde during his recent visit to Australia in September 2010.
For a video where Dr Hyde talks about understandings of ME and CFS, click here.
Emeritus Professor Malcolm Hooper
Malcolm Hooper is a British biochemist and emeritus professor of medicinal chemistry at the University of Sunderland. He is best known for his advocacy related to Gulf War syndrome.
Journal Article: Hooper, M (2010) 'Magical Medicine: How to make a disease disappear', University of Sunderland, UK. (442 Pages) [Full Article]
Video: 'Engaging with ME' (2008) Professor Hooper explains ME/CFS, Fibromylagia and gulf war syndrome to an ME support Group, Norfolk, UK. (Ten part video, total 78 mins)
Dr Martin Lerner
To view Dr Martin Lerner’s comments on ME/CFS and exercise, please click here. For information on his research and 'Energy Index Point Score', please visit the 'CFS Viral Treatment' website.
Article: Learning CFS: The Lerner Antiviral Treatment Trial Succeeds
Journal Article: Lerner, A et al (2010) 'An update on the management of glandular fever (infectious mononucleosis) and its sequelae caused by Epstein–Barr virus (HHV-4): new and emerging treatment strategies', Virus Adaption and Treatment, vol. 2, pp. 1350145 [23rd September].
Dr Charles Lapp
Dr Lapp co-runs the Hunter Hopkins Centre in North Carolina, USA. The Centre provides general medical and pediatric care with special interests in chronic fatigue syndrome, ME, fibromyalgia and others.
Website: http://www.drlapp.net/
Eleanor Stein MD
A Canadian trained psychiatrist with an interest in ME/CFS and Fibromyalgia, Eleanor Stein worked at a specialist clinic for ME/CFS in Australia from 1998-2001. She currently practices in Canada.
Slide presentation: Stein, E (2010) 'Why ME/CFS is not a psychiatric disorder', October.
Journal Article: Stein, E (2009) 'Beyond tired: Helping patients cope with chronic fatigue syndrome, Pharmacy Practice, Dec/Jan 2009, pp. 14-21.
Journal Article: Stein, E (2009) 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) program and interdisciplinary research symposium on disabling fatigue in chronic illness', Chronic Diseases in Canada, vol. 29, no. 3.
Dr Alison Bested
Specialises in the treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia and Multiple Chemical Sensitivities.
Website: http://www.drbested.ca/index.php
Dr John Chia
An infectious disease specialist focusing on chronic fatigue syndrome (ME/CFS). For information regarding his herbal immodulator - oxymatrine - please click here.
Professor Martin Pall
Martin L. Pall, PhD, is Professor Emeritus of biochemistry and basic medical sciences at Washington State University. His specialist field is Multiple Chemical Sensitivity (MCS).
Martin L. Pall’s paper, 'How can we cure NO/ONOO− cycle diseases? Approaches to curing chronic fatigue syndrome/Myalgic Encephalomyelitis, fibromyalgia, multiple chemical sensitivity, gulf war syndrome and possibly many others', is published in the February/March 2010 issue of The Townsend Letter: The Examiner of Alternative Medicine. More details here.
On the 4th of August 2009, ProHealth hosted a Q & A session with Dr Pall on the evidence that MCS is a toxicological illness.
Article: Myatt, D et al (2008) 'B-12 Deficiency in ME/CFS and FM May Provide Clues & Relief (Footnoted Version)', Prohealth, [Full text, April 11].
Dr Richard van Konynenburg
An independent researcher, he has been exploring the role glutathione may play in ME/CFS. For more information on Methylation and Glutathione as Keys to CFS, please click here, and for slides, click here.
van Konynenburg (2010) 'Conference presentation: Application of the Yasko Protocol to the Treatment of CFS', Yasko Protocol Conference, Boston, July. Kindly posted with author permission on Nico Vanden Eynde website.
van Konynenburg (2009) 'Electromagnetic radiation sensitivity and methylation', ME/CFS Methylation Forum, Oct. 11.
van Konynenburg (2009) 'Treatment Study of Methylation Cycle Support in Patients with Chronic Fatigue Syndrome and Fibromyalgia', from the 9th International IACFS/ME Conference in Reno, Nevada.
van Konynenburg (2007) 'Glutathione Depletion-Methylation Cycle Block: A Hypothesis For the Pathogenesis of Chronic Fatigue Syndrome'
Dr. David S. Bell
Dr. Bell is the author or co-author of numerous scientific papers on CFS, and, in 2003 was named Chairman of the Advisory Committee for Chronic Fatigue Syndrome of the (US) Department of Health and Human Services. Dr. Bell regularly publishes the CFS-based newsletter, Lyndonville News.
Website: http://www.davidsbell.com/
News Article: Bell, DS (2011) '"The fruitcake factor": Dr. Bell on the neurological nature of ME/CFS', Prohealth, March 2.
Resource: Bell, DS (2000) 'Faces of CFS', Lyndonville, New York.
Slide presentation: Factitious disorder and CFS in adolescents, Presentation to CFS Advisory Committee (US) DHHS, on October 29 2009.
Dr Jacob Teitelbaum
Dr Teitelbaum was a student at medical school in the 1970s when he was diagnosed with CFS and FM. His life's work has been in treating people with these conditions. His website contains information and resources to support people with ME/CFS and FM.
Website: EndFatigue.com
Resource: Davidson, Jo (2010) 'Zentertainment Radio reviews 'Beat sugar addiction now' by Jacob Teitelbaum', Zentertainment Radio Podcast, September 16th.
Ashok Gupta
Q&A Session with Ashok Gupta
On 10th July 2009, Prohealth held a live chat with Ashok Gupta, the Developer of the Amygdala Retraining Program™ for ME/CFS and FM.
