Personal ME/CFS stories and accounts

Hearing another person's experience can be helpful in dealing with your own experience of ME/CFS. On this page, we'd like to include a number of personal stories about living with ME/CFS to help people understand that they are not alone in managing this debilitating condition.

We're happy to accept stories from people with ME/CFS, or stories from parents/carers of people with ME/CFS. Stories can be long (up to 1000 words) or short, and can be anonymous if you wish. Over time, we will build a small archive of personal stories of ME/CFS to add a local voice to the global ME/CFS experience.

Guidelines:

  • Please keep entries under 1000 words.
  • By submitting your story to admin@mecfs-vic.org.au you grant permission for it to be published on this website, http://www.mecfs-vic.org.au.
  • Entries submitted may be forwarded to 'Emerge' for publication; please let us know if you don't want this to occur.
  • Please provide your real name (for our reference) when submitting the story, even if you don't use your real name throughout the story.

There are a number of good stories on our Facebook discussion page, which can be accessed here: http://www.facebook.com/topic.php?uid=73831909110&topic=10515

Send stories to: admin@mecfs-vic.org.au

Story: Kidd, Pam (2011) ‘Pam Kidd Tells a Family Story of ME/CFS & FMProhealth, March 30.

Determined to raise awareness of ME/CFS & FM in this generation, Pam Kidd has just published a book on her family’s struggles with this illness, made worse by the disbelief & lack of physician training that hinder diagnosis.

 

ME/CFS Australia (Victoria)
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Support Line: (03) 9791 2199 | Admin: (03) 9791 3100 | Email: admin@mecfs-vic.org.au
 
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