Political and government news and policy

This section contains references to political and government news items related to ME/CFS.

Australia

Australian Government Department of Health and Ageing, NICNAS & OCSEH (2009) 'DRAFT Multiple Chemical Sensitivity: Identifying key research needs', Commonwealth of Australia.

Australian Government (2009) Shut Out: The experience of people with disabilities and their families in Australia, Commonwealth of Australia.

People with disabilities to be excluded from accessible parking under proposed scheme (30 May, 2009)

United Kingdom

Britton, Tony (2011) 'Replay Parliamentary debate on ME', ME Association UK, February 2.

Britton, Tony (2010) 'Commons early day motion on ME research', ME Association UK, November 4.

The 25% ME Group (2010) 'Submission regarding DSM-V and ME/CFS', compiled by Professor Malcolm Hooper and Margaret Williams, March.

ME Action UK (2010) Letters exchanged between Professor Malcolm Hooper and Sir Michael Rawlins, chairman of NICE.

Hooper, M (2010) 'Magical Medicine: How to make a disease disappear', University of Sunderland, UK (442 Pages) [Full Article].

Liberal Democrat MP Annette Brooke led an adjournment debate on ME (23 February 2010)

Parliamentary inquiry on NHS service provision for people with ME (June, 2009)

Inquiry into the status of CFS/ME and research into causes and treatment (November, 2006) By the Group on Scientifc Research into Myalgic Encephalomyelitis.

Tom Kindlon (Ireland) has collated research results that show Graded Exercise Therapy produces a high rate of adverse reactions in ME/CFS. Submitted to CDC 2009 Click here for full report.

Europe

Journal Article: Maes, M & Twisk, F (2010) 'Treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multisystem disease, should target the pathophysiological aberrations (inflammatory and oxidative and nitrosative stress pathways), not the psychosocial “barriers” for a new equilibrium', Patient Education and Counselling, [Abstract, published online Mar 19].

Please sign Italian petition for recognition of MCS, The Canary Report, March 7th 2010.

An Italian law proposal for environmental illnesses and disability, Chemical Sensitivity Network, Germany.

Press release from Norway’s Ministry of Health and Care services: Better Offer to ME Patients.

United States of America

(2009) 'Socio-economic impact of ME/CFS patients and society', European Society for ME', June. [No link available]

Jason, L et al (2008) 'The ecomonic impact of ME/CFS: Individual and societal costs', Dynamic Medicine, vol. 7, no. 6. [Full Article]

 

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