Useful Links

Table of contents:
Australian ME/CFS Organisations
Australian Links
International Links
Research Links

Australian ME/CFS Organisations

Australian Links

Better Health Channel: Chronic Fatigue Syndrome
The Better Health Channel provides online consumer focused health and medical information. All information is quality-assured, reliable and regularly reviewed.

Chronic Illness Alliance: Invisible Illness
A web-based database which provides information on chronic illnesses experienced by children and young people in Victoria, Australia.

ME/CFS Legal Resources
Provides Australian legal resources and information on ME/CFS, including legal cases, legal advocates, and links to all relevant Guidelines.

Allergy and Environmental Sensitivity Support and Research Association Inc (AESSRA)
A support and information service for people with allergies and sensitivities, particularly chemical sensitivities.

Royal Children's Hospital Chronic Illness Peer Support (ChIPS)
ChIPS is a Chronic Illness Peer Support program for young people living with any type of chronic illness or medical condition.

ME/CFS Helpful Hints for Daily Living
A collection of practical hints for people with ME/CFS, including information on services and resources, with contact details to support and assist people with ME/CFS, their carers, families, friends, and health care practitioners.

Life Goes On: Telephone Counselling
'Life Goes On' is a telephone counselling line for people who are seriously ill and those who care for them. The line provides strategies and choices to help you get more out of life despite your illness or loss. Please call on 1300 364 673 or visit the website here.

Creative for a Second: Creative Works by People Living with ME/CFS
Creative For A Second was born when artist and person with ME/CFS Kirrily Anderson began to notice the large amount of creativity amongst the ME/CFS community and decided to put it all together in a book. Read her book online here.

Centrelink: Disability Support Pension
Centrelink's website contains much information on the Disability Support Pension, however the FM/CFS/ME Resources website in the US contains concise information on obtaining the benefit, presented in an easier to follow format.

ME/CFS on Myspace
A young member of ME/CFS Australia (Victoria) has created a Myspace page all about ME/CFS. Check it out here.

Mindd Foundation
Focuses on paediatric disorders such as Autism, ADHD, Asthma, allergies, chronic illness, learning and language delay, and digestive and behavioural disorders..

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International Links

European Society for ME (ESME)
The mission of ESME is to create a Think Tank where top scientists from relevant fields can discuss current ME knowledge in order to determine the most crucial direction of future research, and to provide a reliable source of cutting-edge ME information that ESME will incorporate in the education of medical professionals.

European ME Alliance (Euro-ME) (UK)
A collaboration of ME support charities and organisations in Europe who intend to provide a common view and the scientific facts regarding the neurological illness myalgic encephalomyelitis (ME/CFS).

Association of Young People with ME (UK)
AYME is the largest charity for children and young people in the UK with ME/CFS. Their website provides news, resources and information related to health practices and treatments, and education.

Whittemore Peterson Institute for Neuro-Immune Disease (USA)
The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.

ME FM Action Network (Canada)
Home of the Canadian Consensus Documents and resource library.

ME Association of Ontario (Canada)
Founded in 1990 by a group of people with ME/CFS.

Phoenix Rising: ME/CFS Emergency Action List (USA)
A global mailing designed to promote opportunities to make a difference in ME/CFS.

Immune Support: Chronic Fatigue Syndrome (USA)
Provides information on ME/CFS, symptoms and treatment, links to the latest research and latest news developments.

FM/CFS/ME Resources (USA)
Provides information resources and research on ME/CFS.

ME/CFS & Fibromyalgia Information Exchange Forum (Co-Cure)
"Co-operate and Communicate for a Cure" includes research updates, clinical updates, news articles and a message board.

CFIDS & Fibromyalgia Self-Help
Dr. Bruce Campbell's self-help site, includes online courses, library and a shop.

CFIDS Association of America (USA)
The CFIDS Association of America is the largest and most active charitable organization dedicated to conquering Chronic Fatigue Syndrome.

Chronic Fatigue Syndrome Advisory Committee (CFSAC) (USA)
CFSAC provides advice and recommendations to the Secretary of Health and Human Services on issues related to Chronic Fatigue Syndrome.

SFC League (Spain)
Provides a platform for action for people with ME/CFS in Spain. SFC League supports patients through the web, providing information about the disease, as well as patients rights. Download an information book (in Spanish) here.

Prohealth
Prohealth contains comprehensive nutritional support for any number of health concerns; updates on the latest medical news; chat rooms; message boards and support communities with thousands sharing information, advice and treatment experiences.

CFS Central
Beyond-the-headlines reporting on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the retrovirus XMRV.

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Research Links

Alison Hunter Memorial Foundation
Research and information related to ME/CFS.

International Association for CFS/ME (USA)
Dedicated to scientific research and improved patient care.

Invest in ME (UK)
An independent UK charity campaigning for bio-medical research into Myalgic Encephalomyelitis (ME).

Journal of Chronic Fatigue Syndrome
A journal dedicated to presenting integrated, multidisciplinary studies that draw from experts of many fields in regards to ME/CFS. All issues of the JoCFS are available to read online and download.

The ME Association (UK)
Support and information organisation that also funds and supports research.

The Australian e-Journal for the Advancement of Mental Health
AeJAMH is a forum for advancing promotion, prevention and early intervention approaches to mental health. It is a peer reviewed, online, open access journal.

Melbourne University: Keeping Connected
A study investigating the experiences and perspectives of young people whose schooling is disrupted by illness or accident with the aim of developing a best-practice model for the professionals and institutions who work with young people in this situation.